On December 5, a roundtable discussion on "Law and Ethics: Protecting Patients' Rights" was held at the House of Orphans. Representatives from patient groups, healthcare professionals, pharmaceutical companies, media, and the public gathered to explore how ethics and laws shape patient care.
Here are the key points of the discussion.
Yuri Zhulyov, co-chairman of the All-Russian Union of Public Associations of Patients, questioned what constitutes ethical behavior in patient-centered healthcare. He stressed the importance of ethical codes for both patient organizations and healthcare professionals. Zhulyov noted that ethics cannot replace laws but underscored the need for clear legislation defining patient and doctor rights, including informed consent for treatment. He also highlighted the delicate balance between patients' rights and parents' responsibilities, particularly for children, advocating for well-considered therapy changes and full disclosure of risks and alternatives. To address these challenges, Zhulyov proposed developing detailed clinical guidelines and enhancing regulatory oversight in healthcare facilities.
Larisa Matveeva, Executive Director of the Association of International Pharmaceutical Manufacturers (AIPM), outlined the AIPM's 30-year history and its role in promoting ethical practices. The AIPM introduced a mandatory code of conduct in 1998 and has been working with the All-Russian Union of Public Associations of Patients to address unmet needs in patient-pharma interactions. Matveeva also mentioned ongoing efforts to revise the code to better engage with patient groups.
AIPM's Head of Strategic Partnerships Daria Bychkova emphasized the AIPM's commitment to doctors and patients, including quality assurance of medicines. Bychkova cited international companies' success in ethical collaborations with patient organizations, noting initiatives like awareness programs and support for families to prevent doctor burnout.
Deputy Director for Medical Affairs at the Russian Pediatric Hospital Ekaterina Putilina shared her insights on building effective relationships between doctors and parents. She underscored the importance of trust and partnership in child healthcare, noting that patient organizations play a crucial role in this collaboration.
Natalya Kulakova, Head of Project Activities at the "Krug Dobra" Foundation, recounted the creation of their Code of Conduct and ethical principles. She described it as a flexible document adapted to evolving needs. The Foundation operates a pharma reception to cooperate with pharmaceutical community, with the first request for ethical guidance coming from a professional association, reinforcing the relevance of this dialogue.
"House of Orphans"’ Chair Anastasia Tatarinova concluded the roundtable by expressing hope for ongoing dialogue. All participants agreed that the harmonisation of legal and ethical frameworks is essential to protect patients' rights.
Source: The "Krug Dobra" Foundation
Here are the key points of the discussion.
Yuri Zhulyov, co-chairman of the All-Russian Union of Public Associations of Patients, questioned what constitutes ethical behavior in patient-centered healthcare. He stressed the importance of ethical codes for both patient organizations and healthcare professionals. Zhulyov noted that ethics cannot replace laws but underscored the need for clear legislation defining patient and doctor rights, including informed consent for treatment. He also highlighted the delicate balance between patients' rights and parents' responsibilities, particularly for children, advocating for well-considered therapy changes and full disclosure of risks and alternatives. To address these challenges, Zhulyov proposed developing detailed clinical guidelines and enhancing regulatory oversight in healthcare facilities.
Larisa Matveeva, Executive Director of the Association of International Pharmaceutical Manufacturers (AIPM), outlined the AIPM's 30-year history and its role in promoting ethical practices. The AIPM introduced a mandatory code of conduct in 1998 and has been working with the All-Russian Union of Public Associations of Patients to address unmet needs in patient-pharma interactions. Matveeva also mentioned ongoing efforts to revise the code to better engage with patient groups.
AIPM's Head of Strategic Partnerships Daria Bychkova emphasized the AIPM's commitment to doctors and patients, including quality assurance of medicines. Bychkova cited international companies' success in ethical collaborations with patient organizations, noting initiatives like awareness programs and support for families to prevent doctor burnout.
Deputy Director for Medical Affairs at the Russian Pediatric Hospital Ekaterina Putilina shared her insights on building effective relationships between doctors and parents. She underscored the importance of trust and partnership in child healthcare, noting that patient organizations play a crucial role in this collaboration.
Natalya Kulakova, Head of Project Activities at the "Krug Dobra" Foundation, recounted the creation of their Code of Conduct and ethical principles. She described it as a flexible document adapted to evolving needs. The Foundation operates a pharma reception to cooperate with pharmaceutical community, with the first request for ethical guidance coming from a professional association, reinforcing the relevance of this dialogue.
"House of Orphans"’ Chair Anastasia Tatarinova concluded the roundtable by expressing hope for ongoing dialogue. All participants agreed that the harmonisation of legal and ethical frameworks is essential to protect patients' rights.
Source: The "Krug Dobra" Foundation